General BeCPR project information

Last updated: 2023-04-04 08:34

Project name

Belgian Cerebral Palsy Registry

Project abbreviation

BeCPR

Project code

HDBP0051

Primary organization that oversees implementation of project

  • Not available

Partner organization participating in project

  • Not available

Organization that commissioned this project

  • Not available

Organization providing monetary or material support

  • National Institute for Health and Disability Insurance (RIZIV-INAMI)

Brief project description

Cerebral Palsy (CP) is a disorder that affects muscle tone, movement, and motor skills (the ability to move in a coordinated and purposeful way), and goes along with many other problems such as global delay, visual and hearing problems and epilepsy. It is caused by a lesion of the developing brain and is one of the most common physical disabilities in children. An important aspect of high-quality healthcare is the detailed and systematic recording of epidemiological data over time as they provide crucial information for better understanding the causes of CP, developing best practice guidelines for treatment, monitoring trends in CP as well as raising standards of care for individuals with CP. The BeCPR is a collaboration between the five cerebral palsy reference centres in Belgium, registering such national CP data, making it socio-economically highly relevant. Moreover, it enables Belgium to be included as a partner in the Surveillance of CP in Europe.

Regulatory framework of this project

Consult the regulatory framework information published on the fair.healthdata.be pages.